17 April - World Hemophilia Day 2021
World Hemophilia 2021 is on 17 April is celebrated to increase awareness of Hemophilia & bringing the global bleeding disorders community together. Learn Theme History, Facts, and Activities.
Every year on 17 April World Hemophilia Day is commemorated worldwide to spread awareness of Haemophilia, von Willebrand disease, and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
In other words, we can say World Hemophilia Day is the day the whole bleeding disorders community comes together to celebrate the continuous advances in treatment while raising awareness and bringing understanding and attention to the issues related to proper care to the wider public.
History of World Hemophilia Day
World Hemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH), which chose 17 April as the day to bring the community together in honor of the founder of the World Federation of Hemophilia - Frank Schnabel’s birthday.
World Hemophilia Day 2021 Theme
The theme of World Hemophilia 2021 is “Adapting to Change, sustaining care in a new world”. This important event is about bringing the global bleeding disorders community together. With the COVID-19 pandemic having a major impact on people with a bleeding disorder, that objective has never been more important.
Some of the themes over the years were as follows:
- 2020: “Get + involved”.
- 2019: "Reaching Out: The First Step to Care."
- 2018: "Sharing Knowledge Makes Us Stronger".
- 2017: “Hear Their Voices”.
- 2016: “Treatment for All, The Vision of All”.
- 2010: “The Many Faces of Bleeding Disorders – United to Achieve Treatment for All”.
- 2009: “Together, We Care”.
- 2008: “Count Me In”.
- 2007: “Improve Your Life!”.
World Hemophilia Day - Statistics & Facts
Statistics and facts show that hemophilia A occurs in 1 out of 5,000 male births and about 400 babies are born with the disorder annually. Additionally, an estimated 400,000 people around the world have hemophilia. About 75% of these people are unable to access adequate treatment or have no access to treatment completely. While there is no cure for this bleeding disorder, there are very effective treatment options available.
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World Hemophilia Day focuses on the significance of educating hemophilia patients and the general public about bleeding disorders. The day will also emphasize the importance of proper hemophilia care and treatment. This will be achieved through media events, awareness campaigns, and a host of activities held around the world.